Gosh it is has been 7mths since my last post ….. opps!
So my last post back in June was where I completely broke down & lost it! I managed to get an appointment with my rheumatologist within the next week. I told him what had been going on … and it was straight off the prednisone’s! (Nasty things! They work well, but do damage also!) So I began slowly coming off them.
Decision was made to re-add back in plaquenil back into my daily meds to work with the Azathioprine. Because of my bad lupus memory I can’t really recall a lot more that happened! But adding the plaquenil has helped me so much! WOW to fact where I had at least 3mths of feeling “normal” and healthy. I was managing to exercise daily, I didn’t need naps everyday and I wasn’t in any (ok maybe minor) pain. It felt like I had my life back in my control! Even now things are good. I’m not saying I am 100% better, cause I do have flare ups every now and then .. .but instead of them lasting a week or more, its only about 24hrs! I still need to remember that I can’t push myself and I need to listen my body ….. and if I over do it, I’ll know about it!
My regular blood work has been good except for the past few weeks where my blood got dangerously too thin. But that has come right now. Iron levels are still an issue … the range is meant to be between 20-100 … mine was at 9! Just a tad low lol! So another daily pill added to my handful! which is currently 11pills plus the odd painkiller through the day when needed too.
Lets hope 2015 keeps getting better. I am hoping to find work this year …. although I do have to find something to work around my illness and family life so I don’t over do it.